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Heart Valve Voice News

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Wednesday 13th March 2019

As Chairman of Heart Valve Voice I am happy to announce the appointment of our newest member to the Trustee Board, Alison Banayoti. Alison will sit as our second patient representative on the board and brings with her a passion for sharing her story and helping to raise awareness of heart valve disease.

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Monday 11th March 2019

LONDON, 11 March 2019 - Heart Valve Voice has launched our report ‘Towards a 
Heart Healthy Future: A Gold Standard in the Diagnosis, Treatment and Management of Heart Valve Disease in Adults' at the 2019 Society for Cardiothoracic Surgery Conference.

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Tuesday 26th February 2019

Heart Valve Voice and The Royal Photographic Society are excited to be launching the second annual instalment of ‘Patient Portraits: A New You’, a photography competition encouraging keen amateur photographers to capture heartfelt moments in time and convey the quality of life many patients experience after treatment for heart valve disease. The images captured will help raise awareness of heart valve disease, its prevalence and symptoms and educate audiences that with appropriate treatment, patients can return to a good quality of life.

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Friday 8th February 2019

Heart Valve Voice has recently joined Patient Information Forum (PIF). A UK membership organisation and network for people involved in healthcare information and support. Helping us stay better connected!

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Tuesday 5th February 2019

On Wednesday the 23rd of January, Heart Valve Voice Chief Executive, Wil Woan was invited by NICE to share his insights and be a part of the development process for the 2019 NICE guidelines for heart valve disease. It was a brilliant opportunity to represent the patient voice amongst the esteemed group of clinicians and leading policy makers in attendance.

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Monday 14th January 2019

At Heart Valve Voice we believe in the importance of studies and trials that aim to help research and improve the diagnosis and treatment of heart valve disease. We have been involved in and provided support for a number of trials over the past few years and have plans for our involvement in more trials and studies to come in 2019.

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Friday 11th January 2019

Heart Valve Voice Chairman Chris Young, Consultant Cardiothoracic Surgeon, is pleased to welcome Chris Arden, General Practitioner (GP) with a special interest in Cardiovascular Disease & Echocardiography and Editor in Chief of the Primary Care Cardiovascular Journal as the newest member of our esteemed trustee board.

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Tuesday 8th January 2019

2018 was busiest year yet at Heart Valve Voice.  We have accomplished a lot over 2018 including our Gold Standard of Care Guidelines, the first ever European Heart Valve Disease Awareness Day, the London to Paris Cycle ride, The Patient Portraits Photography competition, patient events, meetings, parliament events, conferences and much more.

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Tuesday 4th December 2018

On 4 November Wil Woan, CEO, joined patient ambassador Brenda Walker at the Houses of Parliament for a panel discussion with the Medical Technology Group (MTG).

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Thursday 22nd November 2018

Trustees Keith Jackson and Pat Khan recently attended the Issues and Answers conference held in Nottingham. The yearly conference was co-chaired by Dr Chris Arden, GPSI cardiology, Chandlers Ford, and editor-in-chief of Primary Care and Cardiovascular Journal (PCCJ).

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