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Heart Valve Voice News

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Monday 29th June 2020

Last week NICE (National Institute for Health and Care Excellence), the body which provides evidence-based recommendations for care and service provision in England, announced that they had restarted publishing non-COVID-19 guidance in a phased manner. Unfortunately, heart valve disease was not included as a priority in the first phase of guidelines. This means that these guidelines will be delayed until late this year at the very earliest, four years after NHS England first called for the guidelines.

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Saturday 20th June 2020

83-year-old retired office worker, Jessie Moss, was treated for severe aortic stenosis at the very height of the COVID-19 outbreak. Thanks to Professor Newby and the team in Edinburgh, and with the help of minimally invasive treatment, Jessie was able to receive the treatment she urgently required, and can now focus on her recovery and getting back out on the bowls green. Here, is her story:

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Wednesday 17th June 2020

At the very height of the COVID-19 outbreak, retired postman and hospital worker, Lewis Benn, was awaiting treatment for severe aortic stenosis. Having been told he would have to wait till September, Lewis feared for his life, but thanks to the excellent work of Dr Dan Blackman and the team at Leeds General Infirmary, Lewis was admitted, treated and discharged over the course of just 3 days. Here, is his story.

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Wednesday 10th June 2020

​In response to the outbreak of Covid-19 NHS hospitals across the country suspended non-urgent elective surgeries in a bid to manage the strain placed on hospitals in controlling the virus. As Trusts look to manage non-Covid-19 related critical services, NHS hospitals and the private sector are working together to attempt to increase treatment capacities.

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Monday 8th June 2020

​At the very height of the COVID-19 outbreak former military man and lifelong adventurer, Jim Gibson was admitted to hospital with decompensated heart failure. Despite the pressures exerted on our NHS by COVID-19, and thanks to the work Dr Robert Smith and his team at Harefield Hospital, Jim was able to receive an innovative treatment that clips the mitral valve, and in a few short days was discharged home to be with his loving family.

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Thursday 4th June 2020

The journey from diagnosis to treatment of heart valve disease provides a mental health challenge as much as a physical one. It is, therefore, essential that those affected by heart valve disease focus on the psychological aspects of their journey.

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Monday 18th May 2020

In the last few days, we have seen discussions amongst valve disease patients online regarding hospitals use of Anticipatory Care Planning. In these discussions, there has been some concern about hospitals including Do Not Resuscitate (DNR) orders within a valve disease patients ACP.

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Friday 8th May 2020

​Elizabeth Slough is a retired member of Brighton's Alzheimer's Society, where she worked in the Carer's Support Department. Liz is an outgoing personality, a dedicated volunteer and a brilliant advert for the power of positive ageing. She has two married stepdaughters and a sister, who shared her heart valve disease story with her. Here is Liz's story.

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Wednesday 29th April 2020

As Chair of the Valve Council at Global Heart Hub, I thought it important for me to say a few words in response to their recent survey of patients and patient organisations.

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Saturday 18th April 2020

Dental Surgeon, Ian Wintrip, was diagnosed with severe heart valve disease (aortic stenosis) late last year. A keen cyclist, Ian had noticed he was running out of steam early on the bike, but put it down to signs of ageing and learned to live with the new capabilities. Eventually, though, he knew something was up and went to see his GP.

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